Another day. This the beginning of the 4th week of treatment. Radiation everyday and I have my fanny pack back on. No real problems, well you either have diarrea or the other and I have the other so I would not say it is a positive experience. However I do get to experiment with a variety of pills, liquids and other sundry devices all calculated to assist but so far have not---could be why I am gaining weight, oh well. The radiation is beginning to burn the tumor out and according to the radiologists that is good because they hope to create a ulcer where the tumor is and that is good because that is the goal even if it causes pain. You know it is that old saying "No pain no gain". Someone can stick that where the sun don't shine. The truth is that they have so many counteracting and side affects reducing drugs that it has not been as bad as I thouhgt it might be.
We are still evaluating surgical options. We have met with the local surgeon and it certainly looks like a good option. I talked to my nephew Brett who is a doctor and he suggested several more questions to ask and also thought it would not be a bad idea to get a second opinion from Mayo and or MD Anderson.
We talked to MD and they said they would set an appointment with a surgeon, then they would do thier own PET and Endoscopic Ultrasoun, Cardiology study and pulmunary study then decide whether they would do the surgery and scedule within a week. KU would basically do the same thing. The KU doc has done about 125-150 of these procedures and does about 20-30 per year;
MD says they do over 200---but I dont know which doc is being propose or how many he has done. Brett suggests that I go down go through the process and if comfortable go through with it if not come back and go to KU. I have to admit the surgery is giving me more concern than I like but at this time I am pretty comfortable with KU but I dont want to forgo quality for comfort. The other problem is that sometimes there are complications post surgery and this is a consideration--oh well I am kind of worrying this in print so I will stop and play with my flight simulater program.
I close with this thought that I have composed:
Of all the things I ever knew I know this much is true if your not laughing at yourself and stupid things you do your missing all the fun that others see in you!
So it goes
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Darned old Intenet Explorer ate my comment...where was I?
You're thinking too much. My surgical experience (and I've had too many to count)at KU was the best I've ever had. By now you've established a relationship with your physician and "care team." When you switch care in mid-stream it can get complicated. You'll have follow-up appointments and merging the treatments/post-op/etc between the two centers can get really complicated. Your physician may think that the other guy is caring for you just fine (after all you dumped him to go somewhere else) and might approach your care with less enthusiasm. You've entered a relationship with your care team that's like a marriage and when you say "I do" you'd better be committed. You can divorce your care team or you can stay married but you can't sleep around - that never works out!
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